Glimmer of hope in Avery’s heartbreaking cancer battle – The Sunshine Coast Daily

Posted: June 29, 2017 at 10:43 am

AVERY Beal has seen more suffering in her three short years than many people see in a lifetime.

The plucky toddler was diagnosed with Acute Lymphoblastic Leukaemia in August 2014 and has been fighting for her life ever since.

In the last three years, she has lived through chemotherapy, stem cell transplants, and bone marrow transplants.

It's been a rough few years on the rest of the family too.

Avery's mum Jen has spent the last two and a half years living in between the Beal family home on the Sunshine Coast and Lady Cilento's Children Hospital in Brisbane to care for Avery's medical needs.

Dad David has cared for the couple's other five children on the Coast, working to support them while home schooling their autistic twins.

To top it all off, Mr Beal said the family was recently given no choice but to move house after their lease ended.

Despite the tumultuous last few years, the ordeal might finally be over for Avery - although she's still very high risk, doctors have deemed her well enough to come home.

"Avery's been doing really good," Mr Beal said.

"She managed to get transplant stem cells from a baby's (umbilical) cord from another country.

"She managed to get to day 100 after the transplant, which at that stage doctors were happy for Jen and Avery to come home."

Avery had a second bone marrow transplant in March after her first one failed to stimulate Avery's blood cells to create healthy cells instead of cancerous ones.

"We're feeling good but the challenge is that she's still so high risk," Mr Beal said.

"With children, they'll generally speaking only do two bone marrow transplants.

"If it does come back there is literally nothing they can do. They would just make her comfortable.

"At the moment, we have tests done on her bone marrow every month so see that she's still cancer free."

Yesterday Avery had her central line - a long, thin, flexible tube used to give medicines, fluids, nutrients, or blood transfusions -removed for the first time since her diagnosis in 2014.

The bubbly three-year-old will finally be able to go swimming - an experience that Avery has missed out on living on the Sunshine Coast.

Although the spritely tot has an 85% chance of relapsing, the family are confident that this is a good sign.

Despite all life has thrown at her, Avery is a happy child that lights up the lives of those around her.

"She's just incredible," Mr Beal said.

"It just amazes me over and over again how amazing she is on top of the treatments and the drugs; I think she's on eight different meds every morning and evening."

Mr Beal said the biggest hurdle the family currently face is the cost of Avery's multiple medications.

"She had a number on different things to get her body to a place for the transplant she's had in march," he said.

"Since then she's been on lots of different meds to make sure her body doesn't reject the transplant.

"For us finances are the biggest thing.

"Now that Avery is out of hospital we have to pay for medication and Jen's still having to do trips to Brisbane every week or fortnight"

To help the Beals visit http://www.facebook.com/averysupport.

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Glimmer of hope in Avery's heartbreaking cancer battle - The Sunshine Coast Daily

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